Patients with neuromuscular disorders such as ALS, PSMA and PLS face increasing physical limitations in their daily lives. How can they remain active for as long as possible in a familiar environment? The online environment ThuisAlsThuis (‘a home like home’ in Dutch) provides information about the available tools and their influence on a person’s quality of life to patients and their loved ones.
ThuisAlsThuis developed together with the ALS Centrum, UMC Utrecht and the patients themselves, is designed as a virtual home. Visitors walk from room to room to see which tool can be used according to their situation. ThuisAlsThuis introduces patients, family members, and professionals to the various possibilities and means to continue living at home.